Do you remember that obsessive, unprepared feeling you had the first time you were taking a trip with your baby as a new parent? Now, multiply that feeling x10. That’s where I am right now, and that’s saying something because I was one of the most prepared moms out there the first time we took Jack out of town. Zip lock bags of all favorite snacks, every baby product known to mankind, multiple strollers, pack and play, well you all know.
But what do you take for a 3 day stay in the hospital in which your autistic toddler is going to be absolutely miserable, likely sleep-deprived, and continuously wanting to pull approximately 30 electrodes off of his body? Not to mention the fact that since he’s not sick (thank God) he is not likely to want to sit still- at all. Seriously. What?
I got an “itinerary” from the study coordinator today and discovered that we will be transferred to another room at night time for the sleep study and will have a technician hanging out with us all night. This further complicates my packing list, as I will have to choose a small number of things to carry with us each night when we trek over to the lab. They have put in for a gluten/casein free diet for Nate, but I very seriously doubt he will eat much of what they give him. The boy has a crazy picky palate, which means that I really need to pack enough food for three days.
And I need to keep his hands and mind busy. A ream of paper would likely accomplish this since he loves to shred paper and dangle it in front of his face right now. And I will be bringing paper with us. The boy can stim away as much as he needs to this weekend, I have no plans to redirect that behavior. It gives him comfort.