Let me tell you, if you are going to have a kid with Asperger's, you want to have a Jack. His "quirks" are most often positives, and the stereotypical behaviors that people on this end of the spectrum usually possess are frankly adorable with him (well, most of the time). For instance, people with Aspergers are notorious for memorizing long quotations and reciting them at random. Jack has for the most part already figured out how to work them into conversations appropriately. So often we are standing talking to someone and they have no clue he is doing it, and I find myself going, "and there's Curious George again". I am trying not to say it out loud, he doesn't need his cover blown :). One of Jack's favorite activities is watching videos on You Tube about his areas of interest. Below, I have posted a video of him reciting the beginning of a Julia Child cooking show about lobsters, complete with theme music. A great way to remember his 5th birthday. The boy is hilarious.
Anyway, I saw this the other day, and I think it is a good reminder for all of us.
On a completely different (but happy) note, there is good news about Nathan. We are officially going to Kennedy Krieger on May 18th for bloodwork and a full developmental assessment!! Whoohoo! Take THAT establishment! He has qualified for a study on regressive autism that looks for signs of oxidative stress, which is being researched as a cause/contributing factor. I have spoken with at least 4 other research recruiters so far, and two other studies that he qualifies for are not quite yet in the recruitment phase, so they will call me when they are "ready". He is also going to be evaluated for an interventional study on the 18th that would involve either 2 hours of therapy through the facility 4 days a week or parent run interventions (after training of course). How Houdini mommy would get her son all the way up to Greenspring Station 4 days a week remains to be seen.....day by day right? In any case, I am very excited, it's another step on our journey. Also, in regards to my comments the other day that Nate seems "better" (more alert, more verbal) on antibiotics, I have been reading this book called "The Autism Revolution: Whole-Body Strategies for Making Life All It Can Be", and wouldn't you know, the author references the fact that many parents have reported substantial improvement in their children's behavior/speech with antibiotics, with fever, and also with prednisone. Of course, none of these methods could actually be used as "treatment" for autism, but the author points out that it does suggest that autism is more of a "state" than a "trait". In other words, not hard-wired into the brain, and possibly changeable. There are stories of children that are severely autistic getting a fever and literally singing a song when they have previously been close to nonverbal. And when the fever goes away, so does the progress. CRAZY. And encouraging to say the least. The more I read about autism, the more amazed I am at the complexity. Not only of the range of function among different people, but the range of "causes" and treatments. What a tangled web to try and navigate. I mean, I read the other day that curcumin (aka turmeric) has shown significant anti-inflammatory powers and is being studied as treatment for autism, cancer, and Alzheimer's disease! I guess the most important thing is to record everything we are doing. Thank you blog!
I posted a picture of my early mother's day gift below. I saw this website and just loved what these two ladies do. Beautiful autism awareness jewelry that is not "in your face", and is also personalized for my children. Their website is: http://www.kandsimpressions.com/