Friday, 9 September 2016

What A Difference!

   




It has been nearly 2 months since I have written.  I have been afraid- afraid to say out loud that things have turned a corner.  I am still afraid, as I know we are likely still in the honeymoon phase at Jack's new private school.  But you know what??  What the hell!? 

Our bright cheery boy is coming back to us.  I really don't know how else to describe it.  We are three weeks into Jack's new placement, and while I expected to feel a bit of relief in knowing that the staff at this school was better equipped to handle Jack's challenges, I hardly expected to see him feeling so.... EMBRACED.  There is really no better word to describe it.  And HE feels it. 

Today both dad and I were waiting at the front door when he got off the bus.  I asked him how his day was.  He said "amazing".  It hit me- he used to say that ALL THE TIME.  I haven't heard it in a good two years.  I am no fool, I know I won't hear it everyday, but today it brought tears to my eyes. 

It's sad that it took what it did to finally get my son into a setting where he is accepted.  I had so much anxiety putting him on the bus the first day that I sat on our doorstep and cried for a good 20 minutes after he was gone, and he's in 4th grade- not kindergarten!  It was a release for me though, of all the tension of getting him to this place, of all the fear I have had over the last year.  It was the beginning of all of that just melting away.  He has an hour bus ride each way now, which was a big concern for us- he has a lot of anxiety regarding the bus and changes in routine.  The other day I told him it was time to get on the bus and he said, "oh man!" and then he said "oh wait, I like the bus!".  His bus driver is great with him, and other than the fact that he has picked up continuously singing "bird is the word" from one of the older kids on the bus, it has been a very positive experience.  In fact, one day a week ago the bus driver literally forgot Jack- it's a new stop on his route this year and after he made one of his old stops, he just kept going.  He did turn around and come back and get him- but amazingly, Jack completely kept his cool.  I don't know how to explain it, but it's like he just KNOWS that this is his place.  There is no other way I can explain the rapid changes we are seeing.

Some of the differences at this school are so simple, they are not for "special needs" kids so much as best practices for all kids that have gone by the wayside in public school- everyone has a snack time, everyone works on a token system, everyone gets breaks.  I remember when I first moved to NJ in 5th grade, one of the classes there worked on a token system- everyone wanted to be in that class- all kids can benefit from a reward system- it makes me wonder why it isn't more common (other than the amount of work involved in doing this for HUGE class sizes in public schools).  All kids can benefit from all of these changes frankly- my kid just really needs them in order to be successful at this point in his life.  Because everyone in the school is operating on the same system, he doesn't feel singled out, he doesn't feel "special", he just feels like another student, and that is what he has always wanted.  Frankly, we "sell" school to kids as their jobs- why shouldn't they earn money for it???  Jack earns money on his "debit" card every day for behavior, which he can spend in the school's stores (all run by students, he is an employee at a store as well) on Fridays.  I get a "balance sheet" every day showing how he did, how many dollars he earned, where he didn't earn, etc.  I have to say that there has not been any mention of any aggressive verbiage or behavior since I believe his second day.  It didn't take long.  He just needed this.

This came from one of his teachers:
He is more and more comfortable with us, which is allowing his wonderful personality to come out. I have really enjoyed talking to him about planes and animals, he is always surprising me with fun facts about his favorite things! We are still getting to know Jack, but this week I have seen him more interested and willing to work with me. In math, while he might get frustrated, he is quick to use a suggested strategy and then try again. He is really impressing us with how willing he is to try these new and more difficult things. I have really enjoyed our time with Jack so far, I look forward to getting to know him better this year! Thank you for sharing him with us! Have a wonderful Wednesday.

After last year's constant worry and negative feedback, yes, I did indeed cry.  My baby is in a good place.  And all 9 IEP meetings were absolutely worth it for even one day of him experiencing this!!!!

If I could trust him not to internalize only the swear words in this at this point in his life, I would absolutely share this with Jack right now.  I have spent so much of my life trying to "make" other people like me, and so much of my life as a mom trying to help my kids fit in.  I am realizing that neither are likely to be effective.  I am at peace with that.  Happiness- that's what we're going for.


 

7 comments:

  1. This is so happy-making!

    So happy Jack is enjoying school.

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  2. ALL THANKS TO DR WILLIAMS FOR THE GREAT DEED HE HAVE DONE FOR MY DAUGHTER?
    My daughter suffered from autism for more than 2 years which we started experiencing in her when she turned 1 year and 5 months we all thought it will end but got even worse as days went by. We tried all several treatments and therapy prescribed by various doctors we met but to no avail, she lost total concentration and always complain of sensitivity to sound . She usually tells me she haves poor eyes contact. This were steady disorder that disrupted her entire life, even at night she slept less because of this.It was during a casual conversation with a friend that i learned about Dr Williams herbal medicine I was able to contact him on his email address. and give him all the necessary information that he needed,few day later he sent me the herbal portion and his medicine was able to restore her back to normal and she is very okay now without any side effects whatsoever. If you have autism, do not hesitate to contact him on drwilliams098765@gmail.com for advice and for his product. I hope this also helps someone out there

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    Replies
    1. thanks Jessica for the good recommendation to Dr Williams with his herb my son is now also free from autism am really so grateful .

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  3. HOW I WAS CURED TOTALLY FROM AUTISM
    I had my first attack of (AUTISM) when I was 20, I wasn't diagnosed until seven years later when I was totally experiencing speech delay. It was so terrifying that I began dropping things and losing sensitivity to sounds, having severe fatigue and muscle weakness. A horrible poor eyes contact began. I sometimes can't walk straight and fall onto walls and I get leaning disability, the English medications i used proved abortive. i was so frustrated that i had to contact My neurologist,he told me about a new RRMS (relapsing-remitting MS) drug which was only in its trial stage, CAMPATH. I started the chemo-type treatment and some prescribed drugs like: RISPERDAL, EFFEXOR XR, GEODON and MEMANTINE. which resulted in 1st seizure of my life, thereby adding more salt to my injury. As a result to proffer solution to my problems, i started going online in search for a cure, i came across a testimony of a woman who got her cure through HERBAL MEDICATION, at first, i doubted because of the misconception that autism can not be cured. But i later contacted the Doctor through the email provided, and I used his Herbal product, after 1 month of use, I noticed tremendous improvement in my health, 5 months after, I can proudly say, I've been totally cured by Dr.devansh Herbal Medication from AUTISM..., If you have the same health issue, you may contact him for a total change of story, Via: devanshherbalheathcare@gmail.com. I believe your predicament will be a thing of the past just like mine.

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  4. I am Sophie from Canada, I once suffered from a terrible and Chronic autism ,since i was bone , the doctor told me there was no permanent cure i was given medications to slow down its progress, i constantly felt my health was deteriorating as i constantly go out of breath,and this illness was really terrible especially when am going out with my friends, i have this constant disorder for about 31 years, this was really a terrible ailment ,on thin one day that i was going through the internet,and i came across a post of Mrs Kate on how his son was been cured from autism through the help of Dr Williams herbal product, I contacted this herbal doctor via his email and explain everything to him and make purchase of his product,few days later he sent me the herbal medicine through courier service, when i received the herbal medicine, i used it for 1 months and two weeks as prescribed by dr williams and i was totally cured within those week of usage,on thin now i have not experience any sign or characteristics again . for more information you can visit his blog autismepilepsy.blogspot.com for help

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  5. As a mother of a recently diagnosed 8 year old boy on the high functioning end of the spectrum, I just NEED to say THANK YOU for sharing these experiences. I have sat here, reading some of your posts and I no longer feel alone. And I also feel like there is a light somewhere , as we continue to trudge through this awful tunnel. Thank you so much for sharing and providing so much hope to us less articulate mothers of children on the spectrum. I hope your kiddos are doing well.

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  6. Love to you and your family and thank you!

    ReplyDelete