It Just Crept Up On Me!

I was trying to make this evening somewhat productive after the last few days have been a wash.  We have been in lockdown basically since the Dr. Brenner appt- which makes me highly suspicious that this is where we picked up the bug, and I haven't had a chance to sort through all of the supplement/medication changes we made.  I did get a chance to research them, verify doses, and order the best possible formulations, the ones that were not prescriptions anyway.  It was funny, when I took Nate in to be tested for flu, I brought our regular pediatrician the note that Dr. Brenner always gives me to give to her as communication and she said Jenny, I'm a doctor and I can't read this one.  Worst thing was I had had to call both the local pharmacy and our compounding pharmacy and ask about all of the prescriptions he sent in before I could decipher the word she was pointing to- Carnitor.  Now if a nurse and a doctor can't read your handwriting- that's pretty bad.  I'll cut him a break, he sends hand written notes to our primary pediatrician- he gets major points for that.  So anyway, I started by just writing out exactly what I am expected to get into these boys.  And that is as far as I have gotten- too overwhelmed.  I need a new plan- hadn't realized how much we were up to- like I said, it just crept up on me.  And this is also with stopping things that didn't seem to be working.....
Here is our current list (this is a good reference spot for me- guarantee I won't lose this :))

probiotic:
Nate 1/4 tsp qd
Jack 1 tab qd

Calcium:
1/2 tsp qd

MSM
3 grams/day- 1 scoop

P5P- Nate
50 mg tid

zinc
15mg/day 1/2 cap

GABA- Jack
700mg tid

curcumin- Nate
1 scoop qd

miralax- Jack
1 scoop/day

Inositol- Jack
2000 mg tid (1 scoop)

fluconazole
2ml qd

clonidine- Jack
0.2mg qhs

leucovorin
2.5mg 3x/week

carnitor
1tsp bid

vitamin c
1/4 tsp qd

speak smooth (fish oil + vitamin E)
1 tsp qd

methyl B12 shots
Nate 3x/wk
Jack 2x/wk

transdermal glutathione
0.5ml 2x/d

Gasp.  I gotta find me a schedule, or a way to sneak an NG tube in while the boys are sleeping every night.  Seriously, is it just me, or is this just obscene for kids who don't swallow pills yet?  Well Jack actually can swallow small ones now, but I am not pushing my luck- actually maybe I should.  Ugh....help!

New Directions

I had a very insightful conversation last night.  I spoke with one of John and my family members, who also has experience with having children with autism.  I won't go into more detail than that as I do not know if this person is comfortable with it, but needless to say, she also has multiple sons on the spectrum.  They are older than our kids and she was fighting this battle with half the resources I have, and did amazing things for those kids.  I have had her phone number for months, but for some reason I felt very hesitant to call- I am so glad that I did. 

Family commonalities.  In health conditions, in manifestations.  It is mind boggling to me.  And such a huge wealth of information.  I now have several new avenues to explore for the boys.  I am not saying that it is a guarantee that these will also be issues for my kids, but they are definitely areas that I should address, as this is the closest link we have had thus far.  So I will be looking for a gastroenterologist in this area, and I will be asking them to test for certain enzymes, and to look at the yeast/bacteria balance in the gut more carefully.  Asking them to take a closer look at Nate's immune system.  And hormone levels.  Say a prayer for us that some of these things pan out.  Thanks.