We have had a relatively event free month. All done. First of all, Jack has not slept more than an hour and a half in a row in the past week and a half. He has even taken this a step further and will not sleep AT ALL unless I am in the bed with him. Last night I woke up about 10 times with him. At one point I found him sitting ON ME reading a magazine.
We have his IEP meeting on Thursday. I am a nervous wreck. I know he needs a full time aid. I have no idea how to accomplish this. I am embarassed to say this- however- I need an advocate for him. He does not have discipline issues, he is not a "risk" to the school. I need to prove to the powers that be that he needs this aid for attention issues and motor issues- to accomplish his educational goals. His teacher freely states that he is falling behind academically because he cannot focus on his work. I have letters from his pediatrician and his private OT. I have samples of his work from the past few months with and without the aid. I know this is not enough. I am doing all the research I can, and unfortunately all of this research has told me I need the advocate. That I am not going to be listened to. I am a basketcase. Advocates cost thousands of dollars.
We also have our next appointment with the developmental pediatrician this Friday. Lab results, more tests I am sure, and more meds. Oh, and before that, Nate and I are going to be videotaped "playing" again. So that should be fun. We also have the 8 hour day at the SEED study coming up.
Thus my post of facebook this morning:
"I have decided I no longer want to be an adult....if anyone needs me I will be in my couch cushion and bed sheet fort....coloring."
Awesome
We have his IEP meeting on Thursday. I am a nervous wreck. I know he needs a full time aid. I have no idea how to accomplish this. I am embarassed to say this- however- I need an advocate for him. He does not have discipline issues, he is not a "risk" to the school. I need to prove to the powers that be that he needs this aid for attention issues and motor issues- to accomplish his educational goals. His teacher freely states that he is falling behind academically because he cannot focus on his work. I have letters from his pediatrician and his private OT. I have samples of his work from the past few months with and without the aid. I know this is not enough. I am doing all the research I can, and unfortunately all of this research has told me I need the advocate. That I am not going to be listened to. I am a basketcase. Advocates cost thousands of dollars.
We also have our next appointment with the developmental pediatrician this Friday. Lab results, more tests I am sure, and more meds. Oh, and before that, Nate and I are going to be videotaped "playing" again. So that should be fun. We also have the 8 hour day at the SEED study coming up.
Thus my post of facebook this morning:
"I have decided I no longer want to be an adult....if anyone needs me I will be in my couch cushion and bed sheet fort....coloring."
Awesome
You shouldnt feel embarrassed about needing help. I don't have any advice on the subject since Sophie is still much younger and everything Canada is totally different anyway (some better, some way worse)
ReplyDeleteI wanted to ask you, I hope you don't mind, I read a post when you described doing some injections which helped your son speak. Sophie sounds very much like your Nate. She is on Gf/CF for over 8mos now but I never heard of those injections. Did you write a post describing them? I couldn't find but then again maybe I didn't look hard enough... If you find time to reply, thanks so much!
Hey, the shots are methylcobalamin- which is an activated form of vitamin B12. I will try to find a post where I talk about it....bear with me
ReplyDeletehere you go
ReplyDeletehttp://jackandnatesmom.blogspot.com/2012/11/could-it-b.html